Newsletters
Issue 20 - March 2007
Advice on preparing a transition plan. If you are aged 13 and above and have an Education Statement then by law it is your right to a transition plan. Connor tells us his story in his own words. Jaqueline Leech describes Chrisophers journey of finding suitable education support.New on the next upcoming Family Day and a proposed timetable. Thomas visits the Orthodontist.
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Issue 19 - October 2006
Information on Positive Aspects – a newsletter for anyone with an interest in any disability. Jack Fullerton’s story. Information about BDF Newlife – a charity focussing on inborn conditions.
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PDF (628.3 KB)
Issue 18 - February 2006
A round-up of the committee members and a report from the group's National Contact with statistics about the spread of families around the country. An introduction to the new web forum for the group and an article from John and Vanessa about their son Martin and his future after college.
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PDF (2.4 MB)
Issue 17 - August 2005
Report on the 2005 AGM/Fun Day at Coram's Field with a big thanks to those who helped make it happen. Theres a transcript of the Q&A session with Professor Brian Neville, Maria Clark and Nicola Jolleff. Finally there is information on Person Centred Planning and Circles of Support and the results of the questionaire on drooling.
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PDF (3.1 MB)
Issue 16 - April 2005
Details on the current committee and the minutes from the AGM at London Zoo 2004. Mark Mayer tells his story of growing up with WDS and details of the upcoming AGM at Coram Fields.
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PDF (89.5 KB)
Issue 15 - October 2004
Family Day 2004 at London Zoo report and answers to the Q&A session held there. News on the first group Professional Day organised by Professor Neville and the National Contact's report for 2003 - 2004. An article on Elliot and the systems he uses for communication.
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Issue 14 - April 2004
Preparations for the Family Fun Day at London Zoo and fundraising news. Useful links and resources including the Family Trust and Special Abilities Ltd.
Issue 13 - September 2003
News on the recently held AGM/Teddy Bears Picnic and an article by the Sibling Support Project which informs parents and carers on a sibling's point of view. Donna describes her experiences of having two children with WDS - Jake and Ruby.
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PDF (166.1 KB)
Issue 12 - June 2003
Feedback on the Flora Light Challenge and money raised for the group. Details on a charity providing customised bikes for children and an article by Sheena Reilly on why children with WDS have difficulty eating and drinking.
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PDF (89.4 KB)
Issue 11 - January 2003
Useful links and resources and the agenda for the next Family Day and AGM at Stourbridge. The personal journey of Zachary and a message from Contact a Family.
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PDF (69.6 KB)
Issue 10 - August 2002
Report on the Fun Day at London Zoo and the accompanying Question and Answer session. A research update by Dr Maria Clark and an introduction to all the committee. The story of Stian from Norway.
Issue 9 - February 2002
Contact a Family launches a phone helpline and news from New Zealand. Arrangements for Family Day 2003 at London Zoo.
Issue 8 - June 2001
News on a party for children who took part in the research at Great Ormond Street. Judith Melunsky tells how diet might be effecting her son Sam. Registering for Charity status and what that would mean for the group. Elliot's story.
Issue 7 - April 2001
Thomas' story continues. Symptons of Attention Deficit Hyperactivity Disorder and a report from the parents of a child with WDS in New Zealand. Information on benefits.
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Issue 6 - February 2001
Andrew and Karen Hinks continue Thomas' Story. An extract from a review of 47 cases of children with WDS.
Issue 5 - July 2000
Dolphin Human Therapy and a report from the National Contact. Andrew and Karen Hinks tell of their experiences bringing up Thomas.
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Issue 4 - November 1999
Launch of the online Contact A Family Directory and arrangements for the next Family Day in October. A report from the Rare Disorders Alliance-UK.
Issue 3 - November 1999
Report on the Family Day and the new logo chosen for the group. Living with an AAC user from a parent's perspective.
Issue 2 - October 1998
WDS on the World Wide Web for the first time and a report from the Rare Disorders Alliance UK.
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Issue 1 - May 1998
The very first newsletter. An introduction to who's on the committee, and where the acronym WORDS comes from.
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