Worster Drought Syndrome Support Group Title

Welcome to the Website of the Worster-Drought Syndrome Support Group, a group of parents, friends, and professionals who have a direct interest in the Worster-Drought syndrome and of course any one who has the condition.
Please take a look around and feel free to join our discussion forums.

Family day 2010

Posted June 27, 2010, 12:03:50 pm


For everyone who attended yesterday's family day we hope that you had a lovely day and learnt more about the syndrome and made new friends

Dr Maria Clark has made a request  to any family whose child has WDS  to take part in a pod cast (a small film )as this will help to promote the syndrome within the medical profession

If you would like your child to take part please get in touch with me and I will pass on your details

Many thanks

Vanessa
National Contact for WDS Support Group




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Family Day 2010

Posted March 04, 2010, 01:44:09 pm

Hi

By now all members of the group should have received your invitation to this year’s family day, if you have not and wish to attend please contact Vanessa on National.contact@wdssg.org.uk

If you are planning to come please complete your forms and return them ASAP to Monique. Smiley

We have now an updated programme for the day

Worster-Drought Syndrome Support Group Family Day 26th June 2010

Will be at Coram Fields, 93 Guildford Street London, WC1N 1DN.

10-10.30 am   Registration, Teas and Coffees,
Children Settling in with Log Cabin Staff
10.30   AGM Formalities
10.45   Guest Speakers
Dr Maria Clark and  Katie Price
11:40     If time permits, A presentation of two young people’s journey with WDS.
12.00 -12.30   Question and Answer session with Dr Maria Clarke, Professor `Brian Neville and Nicole Jolleff
12.30   Picnic Lunch, bring your own.
1.30   Singing Hands (as featured on BBC’s Something Special)
2.45pm   Teas and Coffee’s
3.00pm   Person Centred Planning- Why is it so important? John and Vanessa Butt
3:45   Time for a chat.
4.30pm    Goodbyes

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Family Day 2010

Posted October 30, 2009, 10:43:33 am

To all members

We are in the process of planning this years AGM/Family Day for June 26th 2010 date yet to confirmed subject to venue availability

Can you help us with the content of the day we already have approached doctors to update us on the syndrome and also input from Professor Hammond who is available to update us on his research, he would like to do more scans of our children’s faces? So if you missed this in 2007 then this is an ideal time to get included in the study.

We have a few ideas but have not got the time to fit them all into the day so please help us by choosing from the following topics?

Makaton workshop
Behavior management
Autism -Something about Autism yet to be arranged
Person Centred Planning. Why it is so important?

Please reply to Monique and Vanessa at national.contact@wdssg.org.uk as soon as possible so we can arrange the day and send you the details of the day

Many thanks

Vanessa Butt
National Contact for the WDS Support Group

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New Committee & Trustees

Posted October 26, 2009, 09:52:58 pm

The WDS Support Group has a new Committee and Trustees.  We will be updating you all shortly with the latest news about the Worster Drought Syndrome Support Group.

We held our AGM Yesterday Sunday 25th October and selected a new Committee and I will send out news to you all soon.

The Committee would also like to update our membership so we can carry on supporting the members, Please do feel free to send me an email if you would like to become a member of the WDS-SG to Chairman@wdssg.org.uk

we are also interested in any ideas you all have on how we can support those you and those who have WDS so please do drop me a email and I will reply.

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WDS "The Link" Newsletter

Posted October 11, 2009, 11:09:59 am

We have sent out a number of newsletters and membership forms to members this week.
If you do not receive a newsletter within next few days do contact me and I post you one out to you

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